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The Brain Book

LIVING AND CARING Coping with Parkinson’s Disease


Page Extent:272 pages
Book Size:210 x 145 mm (Height x Width x Depth)

Quick Overview

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This book is for people with Parkinson’s and the people who care for them. It draws on the personal experiences of over forty people living with Parkinson’s in the hope that sharing their journeys may help readers navigate theirs. Living and Caring is designed to be read once Parkinson’s has progressed to a point where the concept of ‘care’ needs to be considered in all its complexity and offers readers the opportunity to share the experiences of both sufferers and caregivers and their reactions to a wide range of challenges. By covering the care partnership from both sides of the caring coin, readers can understand things from each other’s perspectives and hopefully work together on solutions that work for each unique relationship and situation. Those Parkinson’s sufferers and carers were interviewed separately and their quotes are anonymous so that both could be totally frank about their feelings, struggles and insights. It is organised by subject so readers can dip into topics as they become relevant, as the progression of Parkinson’s varies so widely from person to person.

About the Authors

Ann Andrews

Ann Andrews interviewed the sufferers of Parkinson’s. She worked as a writer, television and theatre producer, researcher and teacher before being diagnosed with Parkinson’s in her fifties. She wrote two books on the subject, Positively Parkinson’s and Grandma’s Brain and intended Living and Caring to be a final work in the trilogy. She was awarded a Queen’s Service Medal for her community work in 2013.

Jennifer Dann

Jennifer Dann interviewed the carers in the book. She is an award-winning journalist with more than 10 years’ experience in newspapers and radio. She is passionate about the work of unpaid carers having grown up seeing her mum care for her severely intellectually disabled sister